For New Pittsburgh Courier
DS-Connect
DS-Connect is a powerful resource where people with Down syndrome and their families can:
•connect with researchers and health care providers;
•express interest in participating in certain clinical studies on Down syndrome, including studies of new medications and other treatments; and
•take confidential health-related surveys. These surveys are aimed at better understanding the health of people with Down syndrome across their lifespans.
For more information about DS-Connect visit: https://dsconnect.nih.gov/en.html.
Down Syndrome Association of Pittsburgh
The Mission of the Down Syndrome Association of Pittsburgh is to enrich the lives of individuals with Down syndrome, their families and the communities in which they live. The association accomplishes this through communication, education, advocacy, fellowship and support for community members’ well-being through their longstanding alliance with the pediatric and adult Down Syndrome Centers of Western PA.
Visit https://dsapgh.org for more information.
Down Syndrome Diagnosis Network
The Down Syndrome Diagnosis Network’s mission is to connect, support and provide accurate information for families that include a person with a Down syndrome diagnosis. The network’s vision is to ensure that families have nonbiased and factually accurate diagnosis experiences, every time, during which families quickly know that they are not alone.
For more information, visit https://www.dsdiagnosisnetwork.org.